Monday, June 28, 2010

8/21/09

I have another blog. A secret blog that only I have access to. When I have deep thoughts that I don't feel like sharing with others, that's where I go. I can type out the things that bother me. Sometimes I feel better. Sometimes the things I write stay with me for a while, popping into my mind often.

Last year Jonathan Roche sent out an email to his followers telling us to think about what we would do if we found out we only had 6 months to live. I thought about it...a lot. I cried. I couldn't, and still can't imagine being given that kind of news. This past week, with the sad news our family has received regarding our dear sweet Sue (Mom's sister) having limited time left, I have been thinking on it again.

I've decided to share with you what I wrote in my secret blog back on August 21, 2009. It's nothing spectacular, just my own thoughts at the time. And I guess goals that I need to get cracking on before my time runs out suddenly. Here it is...copied and pasted..
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Six Months To Live
What would I do if today I found out I only have six months to live? I'd spend a few hours crying and regretting all that I've messed up. Then I would do everything in my power to spend more time with my kids. I'd take many many pictures with each child. I'd go to Texas and spend time with my family there. I'd figure out a way to see the stars from the ocean and the Northern Lights. I'd maybe pick up the french horn again. If I had the strength, I'd take dance lessons, then find a formal event and go dancing with my husband. Shoot, I'd dance with my kids too. I'd take my kids to the beach more. I'd read to them more. I'd hug them longer and more often. I'd find a way to see the broadway production of Les Miserables again, and this time I'd take my kids. Emily and I would complete her dress that we started months ago, and hopefully it will still be her size. I'd sort through the tons of pictures we have in boxes and finally organize them.
Posted by Cheryl at 11:50 AM
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So, that's that. Something to think on. Maybe I should print this out and tape it to my mirror so I can see it every day. My (Our) time is limited...I (we) have to stop being afraid to do things. Tick, tock, tick, tock.

Saturday, June 26, 2010

A Quick Update...

Just wanted to let everyone know that Chris got the final approval on his retirement. So, there's no turning back now. AND since the kids and I are staying here in San Diego instead of moving to a new school, Chris has decided to go ahead and do a retirement ceremony. As before, you're all invited if you want to make the trip here. The official date is December 3rd. That's set in stone. If you plan on coming, it would be great if you could let us know. We need to set up a few things and figure out how many tents to plant in the back yard. Ha ha. No really, I'm not joking.

As far as the school situation...we are staying put for one more school year. Not because we love the school, but because we love the special education team working with Cameron. We still do not have a diagnosis and are working with the team at the school. The team at the school has come together several times and shared their observations and evaluations with each other and then us. In March our pediatrician referred us to a neurologist who specializes in difficult to diagnose cases, like Cameron. I called and discovered there was a loooong wait. Cameron's appointment was set for June 18th. When we told the special ed team at school who the doctor was, their eyes lit up and then they told us that this particular doctor is world renown. Yay! They worked over the next couple of months and put together an extensive information packet for us to give to the neurologist. On June 18th, we showed up for our appointment and were told that our insurance declined to pay. Umm, thanks for the notice. Our insurance company wants us to go to the Naval Hospital. Okiee dokiee. I'm not thrilled with that because I have never, never, ever had a great experience with the military hospitals. EVER. Oh well, gotta do what we gotta do. Chris went in Friday and was told that they are booking appointments for August. CRAP! School starts September 7th and we were hoping to have a diagnosis and a plan by then. Also, the Naval Hospital doctors have their own questionnaire for us and the teachers to fill out. It's SUMMER TIME. We've already done this extensive series of questions for the civilian doctor. Probably more thorough than the one the Navy docs are wanting. But no, not good enough. *sigh* We'll get it done though.

So that's some of what's going on around here. I'll try to put some pics up as soon as I locate the little cable thingy that connects my craptastical camera to my craptastical computer. We have some pictures of Cameron in his karate gi. He's so cute. He just advanced to 2nd degree white belt and I got a little video of him breaking the tape on his belt. His face is priceless. Also, I have some pictures from the zoo and also Cameron's Kindergarten graduation. And we're going hiking tomorrow, so hopefully I can get some good pics then too.

Y'all take care...